Age: 11 months
Weight and height: 16 pounds, 3 ounces and 28 inches long. In January, he had pneumonia and RSV and wasn't able to handle his regular volumes of food so he lost some weight. He was down to 15', 14", but thankfully he's starting to put some of that weight back on now.
Wearing size: Size 3 diapers and 9-12 month clothes.
Likes: He loves attention and is total little flirt with the sweetest smile. He loves army crawling around the house and bugging the big kids.
Dislikes: He really hates it
when I do his G Tube and skin care every morning-not because it hurts,
but
because he can't roll over and play when I'm doing it. He also hates
his skin care routine because he strongly dislikes having his hands,
arms, and head touched and moved around. To get him to
lay still and stop fighting me, I play a Youtube video on my tablet for
him to watch while I'm taking care of his tube (he's a big fan of Peter
Hollens, Lindsey Stirling, and Baby Einstein).
Eating habits: He gets four bottles a day with 5 ounces of
water and 3 scoops of the Alimentum formula which is concentrated for lower volume. I start each feeding by offering the bottle and whatever he doesn't eat is tube fed. He drinks approximately 50% of his formula. He eats pureed
baby food 2 times a day which I add a teaspoon of olive oil and a tablespoon of rice cereal to for added calories. He had been doing well with gluten free baby puffs, but in the last month, has been throwing up every time he has anything more than purees. I'm attributing that to being sick which makes him even more gaggy than usual.
Sleeping habits: He takes a morning nap from about 9:30 am to
10:30 and an afternoon nap from about 1 pm to 3 or 4 pm. He sleeps okay at night, but does still wake up several times. He usually goes right back to sleep when I give him his pacifier.
Milestones: He finally learned how to sit unsupported!! This was a milestone that we've been working on for months and he finally got strong enough to be able to do it.
Miscellaneous: He was sick for ALL of January with pneumonia and RSV. It was a very long, very difficult month for both of us.
He was hospitalized for one night, had three emergency room visits, and saw a doctor several times. He also was on three different antibiotics. I'm so glad he's finally feeling better from that, but his lungs are already sounding junky again so I know that something else is starting up.
We have started taking him to a different health care system because we felt that it was time for some fresh eyes on him. I really loved some of his doctors at Mayo and we're going to miss them, but it's much better for all of his care to be at one place to avoid confusion so he has all new specialists now. The best part is that his new primary care doctor is a genetic specialist and is very good at caring for medically complex children.
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