Age: 9 months
Weight and height: 16 pounds, 13 ounces and 28 inches long which puts him at the seventh percentile for weight and the 32nd for height. He didn't gain much weight last month since he spent most of the month sick.
For comparison here are the other kids' sizes at 9 months old:
Princess: 15 pounds, 12 ounces and 27 1/2" long
Little Man: 18 pounds, 4 ounces and 30" long
Star: 15 pounds and 27 3/4" long
Wearing size: Size 3 diapers and 6-9 month clothes.
Likes: He's very sociable and LOVES attention. He loves being on the floor to play and he's obsessed with paper, which is not good because he eats it and then chokes on it.
Dislikes: He really hates it
when I do his G Tube and skin care every morning-not because it hurts, but
because he can't roll over and play when I'm doing it. To get him to
lay still and stop fighting me, I play a Youtube video on my tablet for
him to watch while I'm taking care of his tube (he's a big fan of Peter Hollens and Baby Einstein). He also is not a fan of his carseat.
Eating habits: He gets five bottles a day with 5.5 ounces of water and 3 scoops of the Alimentum formula. He drinks about 50% of his formula and the rest is tube fed. Because he was sick last month and was having a hard time tolerating his formula, I backed off on the baby food and am just now starting to offer it once or twice a day again. He tasted an orange and immediately had excema breakouts all over his body so we're assuming that citrus is off the table for now along with apples which he also seems to be sensitive to.
Sleeping habits: He takes a morning nap from about 9:30 am to 10:30 when I wake him up for his next feeding. He's such a light sleeper that when I try to tube feed him so he can sleep longer, he wakes up anyways. He stays up until after his 1:30 feeding and then sleeps until his 4:30 feeding. He's dropped the third nap of the day and goes to bed around 8 pm at night after his 7:30 feeding.
Milestones: He still can't sit on his own, but we've been working on that skill. He learned how to army crawl though and is all over the house now! He also figured out how to hold two objects (during his OT session while we were discussing how to get him to do that!) and is saying "dada" a lot. He's only mildly developmentally delayed at this point.
Miscellaneous: Little Dude had his genetics appointment to discuss the results of his last round of genetic testing. The results were as we expected...everything came back negative except for the MYBPC3 gene mutation which we'd already been informed of two months ago when the results came back. The gene mutation causes hypertrophic cardiomyopathy so we'll monitor his heart with echocardiograms every few years. His last echo at the beginning of December was normal so there's no concern for his heart at this point. We'll also probably be tested for the gene as it can be a familial thing. Because Little Dude is doing well overall right now other than his respiratory issues, excema, and feeding tube, the geneticist will see him back in about a year for another evaluation and we'll decide at that point whether to pursue further DNA testing.
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