Feeding Tube Awareness
The Feeding Tube Awareness foundation has SO much information available and also has a Facebook page where you can ask questions about tube feeding. I love the Tubie gear that's available there too! Little Dude has a Supertubie onesie, and I have an "I love a Tubie" bracelet that I wear all the time.
For the first few months after Little Dude got his G Tube, we battled constant granulation tissue that had to be burned off with silver nitrate sticks at the doctor's office. When a new product called Granulotion appeared on the market, I ordered the free sample in hopes that it would help. It didn't take more than a few days for me to be completely sold on it! It gently got rid of his granulation tissue and, with daily use, has kept it from coming back. I highly recommend this to every tubie!! In a Tubie support group I belong to on Facebook, the reviews have been outstanding. It may seem kind of pricey, but a 1 ounce jar goes a long way.
Tubie pads are a cute way to keep Little Dude's stoma healthy. He has drainage from the stoma that irritates the surrounding skin and causes granulation tissue so we keep it covered with something to soak it up and keep the drainage from sitting on his tummy. There are many places on Facebook and Etsy that make tubie pads. We ordered from several different places before we found the pads that worked best for Little Dude. Our favorite is Gotz GPadz on Facebook.
|Tardis tubie pad from Gotz GPadz|
My Tubey Books
My 3 older kids love reading these books, and I love that they introduce different ways of feeding children in a non-scary way. Little Dude is a bit young to understand the books yet, but when he gets older, I think he'll enjoy reading a book about kids like him.
For more special needs resources, you can visit my Special Needs Parenting page.
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