Unprepared

So last week was a bit of an eye opener...

I woke up on Tuesday morning with a slight cold and some asthma issues.  Not a big deal, I just declared the day to be "Watch as Much TV As You Want While Mom Sits on the Couch and Does Nothing" Day.  Except that, a few hours later, I realized that my asthma was getting worse.  Fast.  I called my mom and asked her if she could come help with the kids because just keeping them alive that day was obviously going to be more than I could handle.  She quickly arrived and despite a nebtreatment and over a dozen puffs of my inhaler, my breathing was quickly deteriorating.  At one point, while sitting on the floor, I tried to stand up and was immediately very dizzy, to the point where I couldn't even keep my head up.  At that point, my mom called 911.  The kids thought it was cool when the ambulance came to our house and took mommy away.  I ended up staying the night in the hospital and my mom babysat for us until Hubby came home for the night.

My day so far: severe asthma brought on by a simple cold, nearly passing out from lack of oxygen (thank goodness my mom was at my house), an ambulance ride, 4 nebtreatments, and now in the acute unit at the er on oxygen. They just started me on an oral steroid and took a chest x-ray.  #ihateasthma #mamacantbreathe #dyingforoxygen #sojittery

A photo posted by Hannah (@supermommyornot) on Mar 10, 2015 at 12:08pm PDT

So the point of that kind of boring saga was that I realized how unprepared I really am.  As I sat on the floor with an oxygen mask on my face while the EMTs got ready to take me to the hospital, all I could think of was how much I needed to tell my mom about taking care of Little Dude.  Thankfully, I had an outline of his feeding schedule written up already so I could just hand that over to her, but when it came to his tube care, his skin care, his breathing issues...that's all stuff that I do everyday and I know exactly what works and what doesn't work with him.  I know what to watch for and when to change something in his routines.  I know what therapies he needs to work on that day and how much he can handle.  I realized that I'm the only person who knows how to fully take care of him. 

Also, the thought that I could've been alone with the kids when I nearly passed out and was unable to even reach for my phone is a terrifying thought.  Thank God my mom was there when that happened.

Because of my severe asthma, I've often had to rely on others to help me out.  I hate having to be dependent on others and constantly ask for help, but I don't have a choice.  And now that I have four kids, one of whom is medically complex, it bothers me even more.  My asthma has nearly killed me on several occasions, and I've always been very aware that I have a potentially fatal disease.

If something were to happen to me, I need to have the peace of mind that Little Dude will continue to receive all the care he needs, but his care is complicated and I'm the only person who knows all of the details.  Over the next week, I'm going to put together a word document detailing everything I can possibly think of regarding his medical conditions, his feeding, the storage of his supplies, etc and print it off so anyone who needs to take care of him can do so.  I already have a binder with an overview of his medical history and the names and contact info of all of his specialists, but I definitely need more information on the day-to-day part of his care.  Every month or so, I'll need to update the word document, but will be able to easily do so and then print off an updated copy. 

And just to end things on a good note, I put new batteries in our ball popper and Little Dude was a huge fan :)

I finally got around to putting batteries in the ball popper! Fyi, the belt on his waist helps protect his G Tube when he's playing on the floor. #supermommyornotlittledude #12monthsold #supertubie #ballpopper #newbatteriesnewtoy #playskool

A video posted by Hannah (@supermommyornot) on Mar 13, 2015 at 10:25am PDT

Random Monday-May 6th, 2013

Don't forget about the giveaway for the free "Ring the Bell" dvd!  You can enter here.  Also, if you're interested in entering any other giveaways or have one of your own you're hosting, there is a link-up here for giveaway that are running in May.

Last week we went from shorts and sandals to full winter gear just 2 days later.  You know, last week as in the beginning of MAY.  We had a blizzard in May, people.  I wouldn't be honest if I didn't tell you that I didn't start checking out real estate in Florida by day 2 of the snowmegeddon.  I didn't get any pictures of the snow, but here are some from other people in the area.  On Thursday and Friday, school was cancelled and on Thursday, the post office did not deliver mail.  Remember what the USPS's motto is?

"Neither snow nor rain nor heat nor gloom of night stays these couriers from the swift completion of their appointed rounds"     

I beg to differ.

I love getting deals.  Really, who doesn't?  I found this brand new with tags Luli and Me smocked romper at the local consignment shop for only $5.  It retails for about $56.  I've been dying to get one of these for Star to wear this summer, but couldn't afford one.  I may or may not have screamed in the aisle when I pulled this off the rack and saw the price tag.

We celebrated Little Man's third birthday on Saturday.  Actually, the spoiled little kid gets two birthday parties this year so this was just the first one.  The second one is next Saturday and will be a joint birthday party for Little Man, my sister's son, and my brother's daughter, who are all turning three within less than 3 weeks of each other.  The one this last Saturday was for Hubby's side of the family so, of course, we went with a John Deere theme.

I made this shirt for Little Man to wear to the John Deere party.

I made this cake for Little Man's party.  He was very annoyed that I put his toys ON the cake.

In the morning, while I was cleaning the house and getting ready for the party, my sister and her husband decided to go garage saling and asked if I would be interested in renting their three oldest kids for the morning.  I declined to pay them money for the opportunity, but offered to babysit instead.  As you can see, the morning went very well:
  

Princess is standing.  Little Man and my oldest nephew are on the floor.

 Even though I had 6 kids in my small house all morning and some of the afternoon, I still managed to get the house cleaned (it was like brushing my teeth while eating oreos, but I did it!) and get ready for the party.  Little Man basked in the attention, sang along when we sang him "Happy Birthday", thanked everyone for coming (including me) and was overall, the perfect birthday boy.

After he got over his chagrin about the toys on his cake, he loved it.  As you can see from his face, we had pizza for his birthday supper.

Princess caught a cold that started on Sunday and is having problems with her asthma.  At home, I'm pretty confident in being able to handle the nebtreatments and watching her activity level so she doesn't stop breathing or something "fun" like that.  But today, she had preschool.  Leaving my wheezing child with people who aren't familiar with how she works when she's having asthma issues or who don't understand how serious an asthma attack can quickly become, was hard, to say the least.  Maybe I'm paranoid, but I think the paranoia is pretty justified.  I have asthma and have had multiple hospitalizations (including one which involved me being in a coma for 5 days) and have nearly died from asthma attacks many times.  Maybe Princess's asthma isn't as bad as mine, but I'm not taking any chances since I know first hand how quickly things can go downhill when a person's lungs are closing up.  Asthma related deaths are MUCH more common than people realize, but it's incredibly difficult to get people to realize just how dangerous the disease is.  This is one of the things that scared me most about Princess going to school.       



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Breathing: An Unneccessary Addiction?

Last week was...interesting. Maybe horrific would be a better word.

On Saturday night, Princess started having a hard time breathing, as did I. By Sunday, she was taking nebtreatments which didn't seem to do any good. She spent most of the day gasping, wheezing, and sounding like she was about to take her last breath. Scary. Especially knowing from experience as I do, that severe asthma can be fatal at worst and traumatizing at best. On Monday morning, I called the doctor and got Princess in at 1 pm. The doctor diagnosed her with pneumonia and sent us home with an antibiotic. Tuesday and Wednesday, Princess and I both seemed to improve which was good because I was about ready to have a break-down worrying about PRincess so much while being unable to breathe myself. On Thursday, Princess and I were both much worse. I got Princess into the doctor again. This time, chest x-rays and a blood draw were ordered.Princess  does not particularly care for doctors and nurses probing, touching, or generally looking at her so I was concerned about sending my baby girl off into the x-ray room by herself (They still haven't changed the rule about pregnant women being near the x-ray machine). Apparently however, she and the nurse in charge of baby wrangling that day really hit it off and the only time Princess cried was when the x-ray technician tried to touch her.

The blood tests came back negative and the chest x-ray showed that Princess had pneumonia. DUH! Tell me something I didn't know. The doctor assured me that, since Princess didn't appear to be sick in any way or wasn't even running a small fever, that she had the "best kind of pneumonia to have." That really made my day especially since my daughter was still lying on my lap wheezing and exhausted from lack of oxygen. We were sent home with a prescription for prednisone this time.

Being a lifelong asthmatic myself, I've been around the block a few times with prednisone. In case you don't know, prednisone is a strong steroid that is often given to asthmatics when nothing else is helping. It weakens your immune system, does weird things to your stomach and appetite, can bloat you and make you gain weight. And that's just a few of the lovely side effects. Not something I really wanted to give my daughter, but breathing is kind of important and I know how much prednisone can help.

Princess loves taking medicine, and I've had to hide her baby tylenol because otherwise she begs for it. So I was totally unprepared for the reaction I'd get to the prednisone. The stuff tastes incredibly strong and burns your throat on the way down. Being a strange child, I actually didn't mind the stuff when I was a kid.  Princess  does not take after me in that way. She started eagerly sucking it down and then stopped, gave me a stony glare that clearly said, "How dare you give me something that tastes like this." and turned away. Try as I might, not another drop went down her throat. Most of it made it into her mouth, but was rejected and kicked out immediately. The next morning, I decided to be sneaky. So I made some really strong sickeningly sweet chocolate milk that I knew Princess would absolutely adore. Then I made sure she wasn't watching and surreptitiously poured 2 teaspoons of prednisone in the milk. I handed the cup to Princess who happily took it from me and began gulping it down. Then she realized that I had sabotaged the chocolate milk and I was graced with another "if looks could kill" glare as she handed the cup back to me. Try as I might, she only drank about 2 more sips. In desperation, I called the doctor's office to see if they had any ideas on how to get a 21 month old to take some of the worst tasting medicine available. The nurse cheerily suggested I put it in chocolate milk because "that works every time." She was rather taken aback when I informed her that I had already tried that and my one-in-a-million kid had not cared for it at all. She offered to call the pharmacy and see if they had any ideas. The pharmacist didn't call me back that day and so that night, I recruited Hubby's mom to help with the predisone taking. She used M&Ms as a bribe and managed to get both teaspoons into Princess. I was very relieved to see that Princess had finally taken a full dose of her much needed medicine. The stress of taking care of a child who couldn't breathe, trying to get her to take her medicine, not being able to breathe very well myself, and the incredibly crabby, clingy mood Princess had understandably, but still frustratingly been in for the last couple of days was wearing me down and I was literally standing on the edge of the cliff ready to push someone (probably Hubby) off of it.

Thankfully, Friday night I got a reprieve from the governor. My parents were going to a concert called Bowfire (look it up on youtube, it's amazing) and I had guilt tripped Hubby about not getting me anything for my birthday until he said I could go too. The timing could not have been better. We met one of my mom's old friends at an Indian restaurant which was really good food that I didn't have to cook or clean up afterwords. Then we went to a concert where I managed to relax and enjoy myself. By the time I got home that night, my nearly dead battery had been recharged and I was ready to get back to real life.

Saturday morning, after convincing Princess to choke down another dose of prednisone, I got a call from the pharmacist.
"I put the wrong dosage on the bottle. It's not 2 teaspoons twice a day, it's 2/3 of a teaspoon twice a day." he said.
I stopped breathing until he continued. "It won't hurt her to have taken so much, but it is hard on her stomach. Better skip a dose tonight."
I was furious. Was he saying that I had just forced my daughter to take over twice as much of a harsh steroid as she needed?!?!?!? Since I've been going to the same pharmacy since I started taking medicine and never had a problem before and because Princess was not going to suffer any permanent damage from the overdose, I managed to forgive him, but I will be triple checking everything from now on!

So anyways, that's my week. Lets just say I don't do well under pressure, but everyone came out alive. Even Hubby who almost didn't make it on Friday when, on my ONLY day to sleep in, Princess uncharacteristically woke up at 6:30 am. He could've been sympathetic, but instead his reaction was, "Oh good, you're up. Now you can pack my lunchpail before I go to work." But I managed to refrain from killing him (this time) and we're once again a happy semi-healthy family.

Unsolicited Advice:
I understand that not everyone has this tremendous resource at their fingertips, but whenever I get sick, I call in reinforcements to help me take care of Princess and the house. My younger sister was the lucky victim this time who not so willingly did my dishes, swept the asian beetles off my porch and did my laundry. If you have someone like that around, either ask them over or send the kids to their house!

Just Breathe...Yeah Right

I've had asthma my whole life. And I'm not talking about a little wheezing when I run a marathon, I'm talking about not walking from one room in my house to another without my trusty inhaler. I'm talking about the being-allergic-to-everything-that-grows-outside-or-inside, having-an-asthma-attack-because-of-the-weather-no-matter-what-it-is, and occasionally on-death's-door type of asthma. Not fun. But all that pales in comparison to the fact that Princess has asthma too. I don't know if she has asphyixic asthma (where your lungs spontaneously close up for no reason, leaving you to turn blue and gasp for oxygen like a fish out of water) like me or if she has severe allergies to go with it. But that doesn't matter. The point is that I passed on the gene for asthma to my little girl. I can't bear the thought that she will probably grow up unable to run and play with other kids or go anywhere without her "rescue inhaler" or even have a common cold without it causing serious breathing problems. And it's because of me. When I was younger, I often thought about adopting children instead of taking the risk of giving birth to children who would spend most of their lives on the sidelines unable to breathe because of a disease I passed on to them. But after I got married, the desire to have a child with my husband and the high cost of adoption overcame my rationality and now I have my beautiful daughter.

Princess has yet another cold right now. She gets, on average, one a month. The warm mist vaporizer has become another piece of decor in her room and I always have a stash of lotion tissue on hand to wipe her tiny red nose. Runny noses are an everyday occurence in my house. Yes, I understand that most children her age get a lot of colds. I've mostly ignored the comments from people that it seems as if Princess is sick all the time. But when my sister, who has a little boy only six weeks older than Princess and who spends time almost every day with her, mentioned that her son has only had 2 colds this year while Princess is on her 6th or 7th, I had to admit that in the back of my mind, I began to wonder if Princess's ability to read a book about a cold virus and somehow contract said virus is really normal. This will go on my list of questions to ask the doctor that I will inevitably leave lying on my kitchen table when Princess and I head out the door to the pediatrician. But I digress.

Each time Princess gets a cold, her asthma becomes more evident. We haven't had an official diagnosis since it's next to impossible to convince a toddler to "blow out the birthday candles on the computer screen really fast and hard." (A reference to a diagnostic test that any asthmatic or parent of an asthmatic is familiar with) However, having had asthma since I was old enough to breathe, I know an asthmatic cough and wheeze when I hear one. It absolutely breaks my heart to watch Princess's tiny chest heave as she tries to breathe normally. I've learned how to give her a nebtreatment which was not an easy feat as she has a morbid fear of anything that makes a sound similar to a vacuum cleaner and doesn't particularly care for having a mask the size of her head placed over her mouth and nose. But we've succeeded with the help of the beloved pacifier and lots of loud annoying kids' movies. Just today, I saw her playing with a baby doll over by the nebulizer. Princess was panting from lack of oxygen, but she was giving her baby a "nebtreatment". Isn't that precious? Just what every mother wants their child to learn. At least she doesn't cry while giving her "baby" a nebtreatment like I inevitably do.

Unsolicited Advice:
To help Princess when she's hacking away so hard she can't sleep, I give her a teaspoon of corn syrup which helps her coughing. You can use honey for this too, but make sure you NEVER give it to a baby under the age of one because there's a risk of botulism.